Bengal, Eastern India, was born without a face
and her mouth is a small slit on the left side of her
face. When she was born, concerned doctors were
baffled by her condition for months. Although it
has never been confirmed, they believe she has
a form of neurofibromatosis, a rare deformity that
causes tumours to grow along nerves. Medics told
Khadija and her family there was nothing they could
do after extra skin continued to grow out of control.
She was born with thick heavy eyelids and she
looked different to my other children at birth
but we didn’t think anything of it until we realised
she couldn’t open her eyes properly." Her mother,
Amina Bibi, 50, said.
"When we took her to the hospital she was
admitted for six months and they did lots of tests
but doctors eventually told us there was nothing
they could do. Because the doctors told us there was
nothing they could do we never went back to them.
And as Khadija got older she refused any help.
Doctors told us when she was a baby that if
she attempted surgery she could die, so we have
lived with that fear. Now that Khadija is much
older she has decided herself that she doesn’t
want to have surgery. She doesn’t want to risk dying."
"I'm made this way and I accept it graciously. I do
what I can. If this is how I’m meant to be then I
live with it. It’s not a matter of coping, I just live
as I am"
She continued: "I don’t have any real friends but
I have my family. My family is my only friend and
I love them dearly. My parents are my world. I
don’t talk to strangers. This is who I am and this
is the life I live and I fill my days sitting and thinking,
talking to my mother about life and going for walks
near my home. I like drinking tea. I am happy in this life"
"If only the government would see my position and
help me, I would like that"
Dr Anirban Deep Banerjee, a neurosurgeon from
Apollo Hospital, Kolkata, said;
"I believe she is suffering from Neurofibromatosis
but to confirm we would need to do a gene test.
There's a possibility she has a tumour inside her
face which could be fatal. Right now there is no way
of knowing if she has tumour inside the extra skin and
if left they could kill her."
"If she's willing we would need to do a lot of tests
to determine how successful surgery would be."
Source: Daily Star
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